I have just this minute finished a book, telling the story of someone else who, like me, has owned a guide dog. I wanted to see whether her experiences were anything like my own but as I read the story, it became clear that our paths were to diverge in a way I could never have suspected.
Much later in the story, the author was seen by an eye specialist who operated on her eyes and returned her lost sight to her as a result. She had a genetic disease which blinded her but, like me, could see light at some time but unlike me; she saw colours too which I have never been able to do as far as I can remember for my sight was lost too early for me to recall them.
As I became aware that her operation was going to be a success, I was aware of mixed emotions. I wanted to know how she reacted to sight and seeing the world, herself and family plus colours and how she would learn to see but I was also aware of a deep sense of sadness that I am never to have this experience. Yes it was as I had imagined in that I have always thought that you can’t just open your eyes and see and know what everything was like. No you wouldn’t be able to get up out of a chair and just go anywhere without feeling apprehension and fear because your brain would have to adjust to your new situation and for a while at least you would have to close your eyes and touch things so you could recognise them that way. You’d have also to learn to write in the usual way with a pen and paper but once done, you would be filled with a sense of wonder at the world and all that is in it which is surely what a young child must feel when confronted with the world’s visual imagery for the first time.
I learned things from this story that I never realised and know now that I was quite correct in assuming that there is a great deal of difference between knowing things factually: “The sky is blue or grey”, “roses are red, violets are blue”; “clouds can be like fluffy bits of cotton wool in the sky” etc. and knowing things experientially. She describes how lettuces catch the light, or perhaps it’s the water they’re being washed in as it runs from the tap, and how it creates pools of reflected light which swirl around. I have never thought of this before.
This author was honest enough to talk about the implications of blindness, what it robs you of, how narrow it can make your life and how disconnected from the world you can be because of it and she was fortunate enough to have married a sighted man whilst blind and have many friends who can see.
In other ways I wish I’d not read this book – Not because I am not pleased for her and not just because of sour grapes and horrible feelings of envy, jealousy, rage and frustration but because it has brought to the forefront of my mind the tantalising nearness of a world I live with in parallel to but cannot enter and, yes, I would be telling lies if I said that I happily read this book and thought: “Oh well, never mind! That’s your story I’m happy as I am and never think how good it would be were things different”.
The only area on which I disagree with her is that about when it is “best” to become blind. I don’t think it’s as simple as that. The terrible feelings of helplessness, fear, resentment and longing which often accompany loss of sight later in life are not exclusive to the adventitiously blind. These feelings of knowing what you’ve missed or at least that you have, feeling left out and indeed being so and knowing your life is not going to be the same as it could have been had you not been blind or otherwise disabled for that matter are just as painful in youth and adulthood for those who haven’t seen. It’s like being hit on the back rather than in the stomach. Both hurt and both have to be coped with. Those who’ve lost their sight have a visual memory to take with them and an understanding of a world they are forced to leave – The world of vision – Whereas I have no actual readjusting to do in one way but a cobbled together understanding which makes it hard to choose clothes, find my way by thinking in terms of spatial distances and raised maps and suchlike. I do admit that because I was taught how to cope in the home I don’t “feel blind” at home and can and do cook, know how to identify my tins because I can put Braille labels on them and can do such things as measure cereal out without spilling it everywhere. I neither burn or scald myself and don’t fall downstairs and am not a fire hazard. Older blind people who have seen do tend to do some of these things more often but I am sure that, were I to sleep in the same house with one of them, they would at some time have heard me shedding tears over a horrible journey through a world of nothingness just as I would hear them doing so over things no longer seen by them or possible like their lost ability to paint or read books; see flowers or family.
One thing I do know for sure is that, after I have next slept, I am going to need to employ my happiness strategies all the more rigorously. Just beside me, walking stealthily, is that other “me” which does wonder what the world is really like, why this had to happen in the first place and why something can’t be done to reverse things and, as with monopoly: “get me out of jail”. Sheila, the author, has called this other self from the shadows and it’s a voice I’ve not heard for a long time and a longing I’ve not had for a long time and rarely get now until I hear of someone who has been liberated. It’s going to take all my strength to restrain this other self; to send it back into the shadows because, like her guide dog, mine is ten now as hers was when she wrote the story, and my future is by no means going to be as hers was. However, I don’t know what has happened to her in later life though I have another book here which will no doubt tell me and I don’t know what my future is to be either. I just know that, as it is for the rest of you, it’s got to be a question of one day at a time and playing the hand of cards I’ve been given. However, soon I shall have, for the sake of all these suppressed and now expressed longings, either to escape into fiction – Either reading or writing it and into music in order to divert my thoughts.
What a wonderful reversal of fortune this woman had! At least though, she did, as I hope I would, appreciate it and didn’t, as I don’t, shrug off and play down the enormous impact blindness has on people. The secret now is not to dwell on the difficulties – Easier said than done but I have become an adept at it for it’s something I have to do every day and though I had tears in my eyes when I’d finished this book, I was smiling at the same time. Well then folks, could you call that the facial equivalent of a rainbow?
Tuesday, January 6, 2009
Saturday, January 3, 2009
IT CAN BE DONE.
Let’s start 2009 on a positive note. I’m going to make what will, to some be an outrageous statement and a contradiction in terms. Christmas and the New Year celebrations can be enjoyed without the inclusion of alcohol! Yes you did read it right.
Some years ago, after the death of my husband, I took to drink in a big way. My intention was simple – Drink enough and I’ll forget the misery of being unexpectedly and unpredictably alone – Drink more than enough and hopefully I’d join him. I kept this up for some considerable time until I realised that not only am I a tough little individual who is resilient and constitutionally quite strong but that the procedure didn’t work! I didn’t forget and haven’t died yet! All I had for my troubles was a headache which felt as if a band had set up their equipment inside my skull and I was the poorer both financially and spiritually and was on the way to doing serious damage to my liver and other organs. I didn’t have a moment of supreme enlightment on the way to the road to my personal Damascus and neither did I “get religion” though I have read the Bible from cover to cover. I just got fed up with the dry mouth, continual thirst and headaches and the fact that I needed more of the stuff to achieve the same very transient effect. Then I found that my epilepsy had worsened to the point where I was hospitalised and needed life-long medication which doesn’t go well with alcohol. So I kicked the habit, with only one or two relapses at Christmas time when the pressure to drink is at its strongest.
I had to sit down and analyse the reasons why I drank and knew only too well that it was to do with my deep and painful unhappiness. It was because I couldn’t come to terms with the fact that I was on my own when I didn’t want to be and resented the rejection of me by many sighted people who either don’t get to know me or keep making promises they don’t keep or conduct any sort of relationship on their terms and I wanted a short cut to the oblivion which death brings to us all. At aged thirty-five I had three massive epileptic fits but still refused to die. I wasn’t drunk at the time but instead had just come home from switchboard work at the U.K’s well known charity for those with sight loss. I lost several hours of time and woke up in hospital with a canular in my arm, which dripped anti convulsant medication into my body. I wondered then why I was still here and realised that, though not lucky because of all I have suffered, at least I was still around which is more than could be said for the man I fell in love with and married. I thought too of the terrible distress my very elderly grandmother would suffer had I died or if I destroyed myself by abusing alcohol. Though the epilepsy is definitely the result of the oxygen damage which blinded me, and which began in early adolescence, I can’t deny the fact that what I was doing to myself must have affected its progress just as surely as my having to cope alone without help both of a practical or emotional support.
So conditioned are we to think that every and any celebration must include alcohol that even after I’d made the decision to stop, my Christmas relapses were always due to the fact that I thought I couldn’t enjoy them without it. As it is Christmas is not my favourite time of year so anything which would oil the wheels seemed to me a must. What about the Christmas just gone then?
In June I made my escape from the unspeakably inconsiderate oaf who spoiled my life for seventeen months by playing loud music all night and moved into another flat within the block where I’ve lived for years. With apprehension I heard that a couple was moving in beside me. I dreaded it in case they were a couple of beer swilling louts with an equally loud stereo system and no desire to wear headphones. I worried myself to death for days until I could stand it no longer. Armed with a box of chocolates I did something I’m not noted for – I rang their bell and introduced myself to them. They invited me in, told me they’d suffered in the same way and that they were quiet and private people who also avoided alcohol. We clicked at once and are now not just neighbours but friends and I was so touched when, dreading Christmas as I always do, they invited me round for Christmas dinner. I had the loveliest Christmas possible. The lady of the house is a superb cook and I’ve been teasing them both about constructing a serving hatch in the adjoining wall so that I can push my plate through at meal times. They popped in for New Year’s Eve and throughout both occasions we drank coke or water. When I came home and when they left after each celebration, respectively, I was on such a self-induced high that on went the headphones and up went the music! Then I said to myself, with a shock: “June, you’ve done it all without alcohol but not without friends whose kindness helped you accomplish it”. Both these lovely people keep their eyes on me. If they don’t see me for a little while, I get a ring on the bell to ask if I’m okay. It’s taken me all my adult life to realise that celebrations, especially Christmas and New Year do not have to be lived in an alcoholic haze and life can be happy without it too.
Of course one addiction or need if you like has been replaced with another. I live with music in my ears and as I’ve said before I’ve a strong compulsion to write but at least these are harmless compulsions especially since, in the case of music, I keep it at a sensible volume because I need my ears so much more than I would if I could see. I have been invited to my friends’ and neighbours’ wedding this year and, yes, I expect that too will be an alcohol free affair but the obvious love they feel for each other is all they need and having them as my new neighbours and friends is all I need so folks, if you’re struggling with alcohol consumption and were, like me, conditioned to believe that you can’t manage your celebrations without it, the good news is that you can. Also, if you feel a bit apprehensive about popping round to new neighbours with a box of chocks and introducing yourself, go on, give it a go! You may be unlucky and find you’ve met a real waste of space like I did when the floods in my first flat caused me to live underneath the neighbour from hell but then again you may, as I have, strike oil. Whatever the outcome, if you sit in your own flat or apartment or house, isolated and drinking alone as I did, you’ll never know and you may miss the warmth and kindness of others which will come back to you for that which you gave and that is more beneficial and precious than any number of bottles of alcohol. Here’s to friendship, love and kindness, as I sit here with my cup of tea!
Some years ago, after the death of my husband, I took to drink in a big way. My intention was simple – Drink enough and I’ll forget the misery of being unexpectedly and unpredictably alone – Drink more than enough and hopefully I’d join him. I kept this up for some considerable time until I realised that not only am I a tough little individual who is resilient and constitutionally quite strong but that the procedure didn’t work! I didn’t forget and haven’t died yet! All I had for my troubles was a headache which felt as if a band had set up their equipment inside my skull and I was the poorer both financially and spiritually and was on the way to doing serious damage to my liver and other organs. I didn’t have a moment of supreme enlightment on the way to the road to my personal Damascus and neither did I “get religion” though I have read the Bible from cover to cover. I just got fed up with the dry mouth, continual thirst and headaches and the fact that I needed more of the stuff to achieve the same very transient effect. Then I found that my epilepsy had worsened to the point where I was hospitalised and needed life-long medication which doesn’t go well with alcohol. So I kicked the habit, with only one or two relapses at Christmas time when the pressure to drink is at its strongest.
I had to sit down and analyse the reasons why I drank and knew only too well that it was to do with my deep and painful unhappiness. It was because I couldn’t come to terms with the fact that I was on my own when I didn’t want to be and resented the rejection of me by many sighted people who either don’t get to know me or keep making promises they don’t keep or conduct any sort of relationship on their terms and I wanted a short cut to the oblivion which death brings to us all. At aged thirty-five I had three massive epileptic fits but still refused to die. I wasn’t drunk at the time but instead had just come home from switchboard work at the U.K’s well known charity for those with sight loss. I lost several hours of time and woke up in hospital with a canular in my arm, which dripped anti convulsant medication into my body. I wondered then why I was still here and realised that, though not lucky because of all I have suffered, at least I was still around which is more than could be said for the man I fell in love with and married. I thought too of the terrible distress my very elderly grandmother would suffer had I died or if I destroyed myself by abusing alcohol. Though the epilepsy is definitely the result of the oxygen damage which blinded me, and which began in early adolescence, I can’t deny the fact that what I was doing to myself must have affected its progress just as surely as my having to cope alone without help both of a practical or emotional support.
So conditioned are we to think that every and any celebration must include alcohol that even after I’d made the decision to stop, my Christmas relapses were always due to the fact that I thought I couldn’t enjoy them without it. As it is Christmas is not my favourite time of year so anything which would oil the wheels seemed to me a must. What about the Christmas just gone then?
In June I made my escape from the unspeakably inconsiderate oaf who spoiled my life for seventeen months by playing loud music all night and moved into another flat within the block where I’ve lived for years. With apprehension I heard that a couple was moving in beside me. I dreaded it in case they were a couple of beer swilling louts with an equally loud stereo system and no desire to wear headphones. I worried myself to death for days until I could stand it no longer. Armed with a box of chocolates I did something I’m not noted for – I rang their bell and introduced myself to them. They invited me in, told me they’d suffered in the same way and that they were quiet and private people who also avoided alcohol. We clicked at once and are now not just neighbours but friends and I was so touched when, dreading Christmas as I always do, they invited me round for Christmas dinner. I had the loveliest Christmas possible. The lady of the house is a superb cook and I’ve been teasing them both about constructing a serving hatch in the adjoining wall so that I can push my plate through at meal times. They popped in for New Year’s Eve and throughout both occasions we drank coke or water. When I came home and when they left after each celebration, respectively, I was on such a self-induced high that on went the headphones and up went the music! Then I said to myself, with a shock: “June, you’ve done it all without alcohol but not without friends whose kindness helped you accomplish it”. Both these lovely people keep their eyes on me. If they don’t see me for a little while, I get a ring on the bell to ask if I’m okay. It’s taken me all my adult life to realise that celebrations, especially Christmas and New Year do not have to be lived in an alcoholic haze and life can be happy without it too.
Of course one addiction or need if you like has been replaced with another. I live with music in my ears and as I’ve said before I’ve a strong compulsion to write but at least these are harmless compulsions especially since, in the case of music, I keep it at a sensible volume because I need my ears so much more than I would if I could see. I have been invited to my friends’ and neighbours’ wedding this year and, yes, I expect that too will be an alcohol free affair but the obvious love they feel for each other is all they need and having them as my new neighbours and friends is all I need so folks, if you’re struggling with alcohol consumption and were, like me, conditioned to believe that you can’t manage your celebrations without it, the good news is that you can. Also, if you feel a bit apprehensive about popping round to new neighbours with a box of chocks and introducing yourself, go on, give it a go! You may be unlucky and find you’ve met a real waste of space like I did when the floods in my first flat caused me to live underneath the neighbour from hell but then again you may, as I have, strike oil. Whatever the outcome, if you sit in your own flat or apartment or house, isolated and drinking alone as I did, you’ll never know and you may miss the warmth and kindness of others which will come back to you for that which you gave and that is more beneficial and precious than any number of bottles of alcohol. Here’s to friendship, love and kindness, as I sit here with my cup of tea!
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